Trisomy X Research Study of Children & Young Adults
Join a Research Study: Enrolling nationally from around the country
Questions, contact the study coordinator, Jonathan Blumenthal, and leave your phone number, email (JB364E@NIH.GOV).
This research study will help all of us better understand behavior and mental health in children and young adults with Trisomy X. The study is currently enrolling children and young adults ages 6 to 25 with Trisomy X.
Who can participate?
- Children and young adults with Trisomy X, 6 to 25 years old
- One or two parents and (optional) one full sister (6 to 25 years old)
What is included in the two-day study?
- Questionnaires and interviews about social-emotional and behavioral functioning
- MRI scan of the brain
- Cognitive and neuropsychological testing
- An individualized report of the mental health diagnostic and cognitive findings with recommendations that families can share with their schools or doctors.
Where and how?
- NIH Clinical Center in Bethesda, Maryland (just outside of Washington, D.C.)
- There is no cost to participate. We provide:
- Participant compensation of up to $400 per child and up to $300 per parent if all procedures are completed.
- Transportation from anywhere within the USA (flights, train, or car mileage)
- Hotel accommodations for three nights and a modest meal allowance
Questions, contact the study coordinator, Jonathan Blumenthal, and leave your phone number, email (JB364E@NIH.GOV).
Study Identifiers
- NIMH Protocol Number: 89-M-0006
- ClinicalTrials.gov Study Number: 00001246
Investigator(s): Armin Raznahan, M.D., Ph.D.